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Monday 26 December 2016

Christmas with special needs may not look like a traditional celebration.

It may mean cancelling family gatherings despite desire or disapproving relatives because your child simply cannot handle even one more second of new sensory input.

It may mean learning new ways of making dinner to incorporate different food needs.

It may mean grieving expectations and celebrating every little victory, even when others think you're nuts for celebrating something they don't understand.

It may mean massive coordination to set  up therapies during holiday hours and find time to start filling out the funding paperwork that comes up every new year.

It may mean facing the holidays like any other day.


You know what though, love covers all.


We planned our pj and cartoon day with weighted blankets and extra naps. We learned new recipes.
This Mama even has no shame admitting I cried when our little man excitedly wanted to dance during our Christmas Eve service, joy shining in his eyes before totally sensory overload hit that night on the phone with Nana and Papa.


Our little guy came to us after an absurdly long labour that left this Mama sore and recovering for months (seriously pregnancy and I do not get along and labour is worse). Over his 3.5 years we've gained more insights into what makes him tick and how to best meet his unique needs and I'm not going to lie,  it's hard work, frustrating work, and sometimes you just don't know so you take it minute by minute.


In so many ways adopting a special needs child is even harder.
Your life is completely turned upside down as financial costs are faced, medical needs  are assessed and treatments are devised, the child is faced with the loss of their environment, their culture, a language, the family is faced with the loss of their structure/time/finances/sleep.

Adoption is risky love.
 I have to wonder how many of us have become afraid to risk because I know how easy it is for my own spirit to sink back into the safety of complacency.

priscilla     walter-001   K 2008   anna (1)

We're afraid so we do nothing and real children sit waiting. We're  not all called to adopt internationally but we can do something. There's domestic adoption, volunteering with local CAS, prayer, fundraising for international adoption through organizations like Reece's Rainbow and the MACC. you can share a child's picture you may not be the family for Priscilla, Walter, Ginny, or Anna but maybe someone you know is  - the power of sharing is underestimated every time.

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